Social, Cultural and Systematic Frustrations Motivating the Formation of a DIY Hearing Loss Hacking Community

2019. Aisling O'Kane, Abdinasir Aliomar, Rebecca Zheng, Britta Schulte & Gianluca Trombetta
Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems.

Abstract

Research on attitudes to assistive technology (AT) has shown both the positive and negative impact of these technologies on quality of life. Building on this research, we examine the sociocultural and technological frustrations with hearing loss (HL) technologies that motivate personal approaches to solving these issues. Drawing on meet-up observations and contextual interview data, we detail participants' experiences of and attitudes towards hearing AT that influences hacking hearing loss. Hearing AT is misunderstood as a solution to the impairment, influencing one-to-one interactions, cultural norms, and systematic frustrations. Participants' exasperation with the slow development of top-down solutions has led some members to design and develop their own personalised solutions. Beyond capturing a segment of the growing DIY health and wellbeing phenomenon, our findings extend beyond implications for design to present recommendations for the hearing loss industry, policy makers, and importantly, for researchers engaging with grassroots DIY health movements.

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Citation

O'Kane, A. A., Aliomar, A., Zheng, R., Schulte, B., & Trombetta, G. (2019). Social, cultural and systematic frustrations motivating the formation of a diy hearing loss hacking community. Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems (pp. 1–14). New York, NY, USA: Association for Computing Machinery. URL: https://doi.org/10.1145/3290605.3300531, doi:10.1145/3290605.3300531

BibTeX

@inproceedings{10.1145/3290605.3300531,
author = {O'Kane, Aisling Ann and Aliomar, Abdinasir and Zheng, Rebecca and Schulte, Britta and Trombetta, Gianluca},
title = {Social, Cultural and Systematic Frustrations Motivating the Formation of a DIY Hearing Loss Hacking Community},
year = {2019},
isbn = {9781450359702},
publisher = {Association for Computing Machinery},
address = {New York, NY, USA},
url = {https://doi.org/10.1145/3290605.3300531},
doi = {10.1145/3290605.3300531},
abstract = {Research on attitudes to assistive technology (AT) has shown both the positive and negative impact of these technologies on quality of life. Building on this research, we examine the sociocultural and technological frustrations with hearing loss (HL) technologies that motivate personal approaches to solving these issues. Drawing on meet-up observations and contextual interview data, we detail participants' experiences of and attitudes towards hearing AT that influences hacking hearing loss. Hearing AT is misunderstood as a solution to the impairment, influencing one-to-one interactions, cultural norms, and systematic frustrations. Participants' exasperation with the slow development of top-down solutions has led some members to design and develop their own personalised solutions. Beyond capturing a segment of the growing DIY health and wellbeing phenomenon, our findings extend beyond implications for design to present recommendations for the hearing loss industry, policy makers, and importantly, for researchers engaging with grassroots DIY health movements.},
booktitle = {Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems},
pages = {1–14},
numpages = {14},
keywords = {social, hearing loss, health, hacking, diy, assistive technology},
location = {Glasgow, Scotland Uk},
series = {CHI '19}
}